Update: it breaks my heart completely that Sebian passed away on 6/20. https://denver.cbslocal.com/2018/06/20/sebs-rec-center-aurora-sebian-holiday/ Please consider giving to Seb's Rec Center and/or the Muscular Dystrophy Association https://www.mda.org/ as the latter looks to find answers to https://www.mda.org/disease/mitochondrial-myopathies.
~~~
Sebian. When I hear his story and I see his struggle, I am awed by his capacity for bravery. The strength of spirit where pain and angst and what should be hopelessness are overcome. My own struggles and concerns are not as much petty as they are dust.
The coalescing of the best is in him. He is the promise of hope, what is best of humanity. Pure: he is freed of so many other imperfections.
I long to know more Sebians or his father. I've been misfortunate to know souls that are slivers of good. They are shadows of what could be. Whispers of songs. Cries for self. Temples of sand.
Its been much rarer to know good. Selflessness. True strength. The Faithful. Simple kindness.
Can we do more? Just a little kindness? Can we be as transformative in life as he? Can we pray for a miracle? That more could see him and care?
https://www.sebsrec.org/donate.html
2 comments:
I just ran across sebians story today on you tube and I quickly googled his name. I'm saddened to learn he has passed away but what lessons he taught us all. the holiday family will be in my prayers. I'm in Virginia and have a disabled daughter hopefully one day we can visit the rec to honor sebian
Touched deeply by his Sebians story.
His father is also an amazing human being.
Post a Comment